Event Details

Workshop Materials

• Workshop Summary: Download
• Workshop Executive Summary: Download

Background

The National Institutes of Health (NIH) promotes the use of Common Data Elements (CDEs) to standardize data collection, sharing, and interoperability in health and disease research. In line with Congressional Appropriations language, the Office of Data Science Strategy (ODSS) is expanding these efforts by collaborating with research stakeholders to enhance and broaden the development and adoption of CDEs for various diseases areas, including but not limited to autoimmune and immune-mediated conditions. This workshop aims to bring together expert panels, researchers, professional societies, and patient organizations to explore the value, resources, and applications of CDEs.

Purpose

This workshop has the following main goals:

• Assess, enhance, and broaden the development, adoption, and use of common data elements (CDEs) for research across various diseases and conditions, including, but not limited to, autoimmune diseases and immune-mediated conditions.
• Demonstrate successes and discuss strategies to encourage the adoption and use of CDEs in research, including resources, approaches, and methods for cross-study analyses.
• Engage all stakeholders—including National Institutes of Health (NIH) staff, extramural researchers, professional societies, and patient organizations—and participants from diverse professional backgrounds to discuss leveraging CDEs to enable interoperability of clinical and translational research data.

NIH CDE Workshop Planning Committee

Lew Berman, NIH/OD
Deborah Duran, NIMHD
Kerry Goetz, NEI
Anupama Gururaj, NIAID
Sweta Ladwa, NHLBI
Snipta Mallick, NIH/OD
Steve Tsang, NIH/OD
Denise Warzel, NCI
Victoria Shanmugam, NIH/OD

Hybrid Event

This is a hybrid workshop. Virtual participation is available. For those attending via webinar, the link will be distributed via email prior to the date of the event.

Registration Deadline

Thursday, March 7, 2024