National Institute of Health Office of Data Science Strategy
Toward an Ethical Framework for Artificial Intelligence in Biomedical and Behavioral Research:
Transparency for Data and Model Reuse Workshop

Rockledge II — 6701 Rockledge Drive, Bethesda, MD
Wednesday, January 31, 2024, 1:00 p.m. – 5:10 p.m. EST
Thursday, February 1, 2024, 9:00 a.m. – 5:00 p.m. EST
Friday, February 2, 2024, 8:30 a.m. – 12:15 p.m. EST

Agenda

Day 1: Wednesday, January 31, 2024

12:30 p.m. – 1:00 p.m. Registration and Networking (lunch not provided or available to purchase on day 1)>
1:00 p.m. – 1:05 p.m. Welcome and Logistics
Laura Biven, Ph.D.
Data Science Technical Lead, Office of Data Science Strategy (ODSS),
National Institutes of Health (NIH)
1:05 p.m. – 1:15 p.m. Welcoming Remarks
Susan K. Gregurick, Ph.D.
Director of the Office of Data Science Strategy, Associate Director for Data Science, ODSS, NIH
1:15 p.m. – 1:35 p.m. Workshop Goals and Expectations; Stakeholder Mapping/Setting Expectations
Laura Biven, Ph.D.
Data Science Technical Lead, ODSS, NIH
1:35 p.m. – 1:55 p.m. Introduction to Transparency
Julia Stoyanovich, Ph.D.
Associate Professor, Department of Computer Science and Engineering, Tandon School of Engineering, and the Center for Data Science, New York University
1:55 p.m. – 2:15 p.m. What Could Go Wrong?
Tina Hernandez-Boussard, Ph.D.
Professor of Medicine, Biomedical Data Science, of Surgery and, by courtesy, of Epidemiology and Population Health, Stanford University School Medicine
2:15 p.m. – 2:30 p.m. Break
2:30 p.m. – 3:50 p.m. Use Case Breakout Session #1—Exploring Use Cases and Stakeholder Mapping
  • Synthetic Data: Room 270-A
  • Data Sharing for General Reuse: Room 270-B
  • Multimodal Data: Room 260-F
  • Foundation Models: Room 280-A
  • Proxy Variables: Room 150-A
3:50 p.m. – 4:05 p.m. Break
4:05 p.m. – 4:45 p.m. Plenary Readout and Discussion
4:45 p.m. – 5:00 p.m. Summary Remarks and Day 1 Closing
Aaron Lee, M.D., M.S.C.I.
Associate Professor, Department of Ophthalmology, University of Washington

Day 2: Thursday, February 1, 2024

8:30 a.m. – 9:00 a.m. Networking, Coffee
9:00 a.m. – 9:05 a.m. Welcome
Laura Biven, Ph.D.
Data Science Technical Lead, ODSS, NIH
9:05 a.m. – 9:25 a.m. The Current State of Data and Model Transparency
Aaron Lee, M.D., M.S.C.I.
Associate Professor, Department of Ophthalmology, University of Washington
9:25 a.m. – 9:35 a.m. Morning Plenary Session—Recap and Expectations
Laura Biven, Ph.D.
Data Science Technical Lead, ODSS, NIH
9:35 a.m. – 9:50 a.m. Break
9:50 a.m. – 11:15 a.m. Use Case Breakout Session #2—Achieving Transparency and Mapping Capability Gaps
  • Synthetic Data: Room 270-A
  • Data Sharing for General Reuse: Room 270-B
  • Multimodal Data: Room 260-F
  • Foundation Models: Room 280-A
  • Proxy Variables: Room 150-A
11:15 a.m. – 11:30 a.m. Break
11:30 a.m. – 12:10 p.m. Plenary Readout
12:10 p.m. – 1:15 p.m. Lunch Break
1:15 p.m. – 1:45 p.m. Plenary Session by NIH to Provide Guidance for Upcoming Session (NIH speaker TBD)
1:45 p.m. – 2:00 p.m. Break
2:00 p.m. – 3:15 p.m. Use Case Breakout Session #3 Guidance Session
  • Synthetic Data: Room 270-A
  • Data Sharing for General Reuse: Room 270-B
  • Multimodal Data: Room 260-F
  • Foundation Models: Room 280-A
  • Proxy Variables: Room 150-A
3:15 p.m. – 3:45 p.m. Break
3:45 p.m. – 4:45 p.m. Plenary Readout Session and Discussion
Hybrid discussion with virtual and in-person participants
4:45 p.m. – 5:00 p.m. Day 2 Closing Remarks
Aaron Lee, M.D., M.S.C.I.
Associate Professor, Department of Ophthalmology, University of Washington
5:00 p.m. – 5:30 p.m. Closed Session for Co-leads and Breakout Chairs.

Day 3: Friday, February 2, 2024

8:15 a.m. – 8:30 a.m. Networking, Coffee
8:30 a.m. – 8:45 a.m. Recap of Day 2
Tina Hernandez-Boussard, Ph.D.
Professor of Medicine, Biomedical Data Science, of Surgery and, by courtesy, of Epidemiology and Population Health, Stanford University School of Medicine
8:45 a.m. – 9:45 a.m. Continued Plenary Discussion on Transparency Guidance and Capability Gaps
Hybrid discussion with virtual and in-person participants.
9:45 a.m. – 10:00 a.m. Break
10:00 a.m. – 11:00 a.m. Use Case Breakout Session #4—Future Trends (5 breakout rooms)
  • Synthetic Data: Room 150-A
  • Data Sharing for General Reuse: Room 270-A
  • Multimodal Data: Room 270-B
  • Foundation Models: Room 280-A
  • Proxy Variables: Room 260-F
11:00 a.m. – 11:15 a.m. Break
11:15 a.m. – 12:00 p.m. Plenary Readout Session and Discussion
Hybrid discussion with virtual and in-person participants.
12:00 p.m. – 12:15 p.m. Closing Plenary Talk and Thanks (NIH speakers and co-chairs)
12:15 p.m. Workshop Adjourns
12:15 p.m. – 1:15 p.m. Lunch (Participants are welcome to stay for lunch)