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Program

7:30 a.m. – 9:00 a.m. Breakfast and Registration
9:00 a.m. – 9:10 a.m. Introduction to the Meeting
Simone Sanna-Cherchi, M.D., Associate Professor of Medicine, Columbia University Irving Medical Center, New York, NY, USA
Gary Torgow, Chairman, Huntington Bank, USA
Elie Torgow, CEO, Sterling Group, Detroit
Morning Session 1: Moderators:
  1. Patricia L. Weng, M.D., UCLA
  2. Laura Mariani, M.D., University of Michigan
  3. Paul C. Grimm, M.D., Stanford University
9:10 a.m. – 9:25 a.m. Video: Interviews with rFSGS Patients Across the Country
9:25 a.m. – 9:40 a.m. Recurrent FSGS: The Challenge, the Solution
Donald W. Landry, M.D., Ph.D., Chairman of Medicine Emeritus, Columbia University Irving Medical Center, New York, NY, USA
9:40 a.m. – 10:05 a.m. From Patients to Progress: an ongoing journey for Recurrent FSGS
Debbie Gipson, M.D., M.S., Program Director, National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health, Bethesda, MD
10:05 a.m. – 10:40 a.m. Patient’s Session # 1 and Q&A’s
Antonio Fontanella, Miami, FL
Mariann Wang, New York, NY
Shannon Mulroy, New York, NY
10:40 a.m. – 10:50 a.m. Break
Morning Session 2: Moderators:
  1. Matthew G. Sampson, M.D., M.S.C.E., Harvard University
  2. Sumit Mohan, M.D., Columbia University
  3. George W. Burke III, M.D., University of Miami
10:50 a.m. – 11:25 a.m. Patient’s Session # 2 and Q&A’s
Sachet Walker/Aiden Walker, Detroit, MI
Alexis Kane, Bennington, VT
Vincent Moolenaar, Amsterdam, the Netherlands
11:25 a.m. – 11:30 a.m. Introduction to the Honorable Congressman John Moolenaar
11:30 a.m. – 11:40 a.m. Honorable Congressman John Moolenaar
11:40 a.m. – 11:45 a.m. Introduction to the Honorable Congresswoman Haley Stevens
11:45 a.m. – 11:55 p.m. Honorable Congresswoman Haley Stevens
11:55 p.m. – 12:40 p.m. Lunch
12:40 p.m. – 12:45 p.m. Introduction to Afternoon Sessions
Simone Sanna-Cherchi, M.D., Associate Professor of Medicine, Columbia University Irving Medical Center, New York, NY, USA
Afternoon Session 1: Moderators:
  1. Alessia Fornoni, M.D. Ph.D., University of Miami
  2. Donald W. Landry, M.D. Ph.D., Columbia University
  3. Astrid Weins, M.D., Ph.D., Harvard Medical School
  4. Ibrahim Batal, M.D. Columbia University
12:45 p.m. – 1:00 p.m. Gary Torgow, Chairman, Huntington Bank, USA
1:00 p.m. – 1:05 p.m. Introduction to the Honorable Senator Debbie Stabenow
1:05 p.m. – 1:15 p.m. Honorable Senator Debbie Stabenow
1:15 p.m. – 1:45 p.m. Keynote Lecture
Novel Mechanisms and Therapies for rFSGS
Moin Saleem, M.B.B.S., Ph.D., Director, Bristol Renal, University of Bristol; Founder and Chief Scientific Advisor, Purespring Therapeutics; Bristol Royal Hospital for Children, Bristol, UK
1:45 p.m. – 2:00 p.m. Q&A and Discussion
2:00 p.m. – 2:05 p.m. Introduction to the Honorable Senator Roger Marshall
2:05 p.m. – 2:15 p.m. Honorable Senator Roger Marshall
2:15 p.m. – 2:35 p.m. Clinical and Genetic Predictors of rFSGS
Nada Alachkar, M.D., Associate Professor of Medicine, Johns Hopkins University of Medicine, Baltimore, MD, USA
Rasheed Gbadegesin, M.B.B.S., M.D., FASN, Professor of Pediatrics, Duke Molecular Physiology Institute, Duke University, Durham, NC, USA
2:35 p.m. – 2:45 p.m. Q&A and Discussion
2:45 p.m. – 2:50 p.m. Introduction to the Honorable Congressman Shri Thanedar
2:50 p.m. – 3:00 p.m. Honorable Congressman Shri Thanedar
3:00 p.m. – 3:20 p.m. Clinical Trials for rFSGS: What We Have and What We Need
Priya Verghese, M.D., M.P.H., Professor of Pediatrics, Ann & Robert H. Lurie Children’s Hospital of Chicago; Northwestern University Feinberg School of Medicine, Chicago, IL, USA
3:20 p.m. – 3:30 p.m. Q&A and Discussion
3:30 p.m. – 3:45 p.m. Break
Afternoon Session 2: Moderators:
  1. Josh Tarnoff, CEO, NephCure
  2. Eloise Salmon, M.D., University of Michigan
  3. Namrata G. Jain, M.D., Hackensack Meridian Health
  4. Kimberly J. Reidy, M.D. Albert Einstein
3:45 p.m. – 4:05 p.m. Utilization of Patient-Derived Pluripotent Stem Cells and Organoids to Study rFSGS
Opeyemi Olabisi, M.D., Ph.D., Associate Professor of Medicine, Duke University, Durham, NC, USA
4:05 p.m. – 4:15 p.m. Q&A and Discussion
4:15 p.m. – 4:35 p.m. Building a Collaborative Resource to Resolve the Causes and Find New Therapies for rFSGS
Simone Sanna-Cherchi, M.D., Associate Professor of Medicine, Columbia University Irving Medical Center, New York, NY, USA
4:35 p.m. – 4:40 p.m. Q&A and Discussion
4:40 p.m. – 5:00 p.m. An Innovative Therapeutic Landscape for rFSGS: Working Together Towards a Cure
Alessia Fornoni, M.D., Ph.D., Professor of Medicine, University of Miami Miller School of Medicine, Miami, FL
5:00 p.m. – 5:05 p.m. Introduction to the Honorable Congressman Jack Bergman
5:05 p.m. – 5:15 p.m. Honorable Congressman Jack Bergman
5:15 p.m. – 5:30 p.m. Conclusions From the Organizers

Keynote Speaker

Professor Moin Saleem, M.D., Ph.D., will be our Keynote Speaker with the lecture titled "Novel mechanisms and therapies for rFSGS."

Dr. Saleem is a Professor of Paediatric Renal Medicine and the Director of the Division of Nephrology at the University of Bristol, and Bristol Royal Hospital for Children. He is also the Founder and Chief Scientific Advisor of Purespring Therapeutics. Dr. Saleem is a world-renowned physician-scientist who has made seminal discoveries in the field of nephrotic syndrome and rFSGS, bridging human genetics with functional studies to understand mechanisms and find cures.