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Preliminary Program

8:00 a.m. – 9:00 a.m. Breakfast and Registration
9:00 a.m. – 9:10 a.m. Introduction to the Meeting
Simone Sanna-Cherchi, M.D., Associate Professor of Medicine, Columbia University Irving Medical Center, New York, NY, USA
Gary Torgow, Chairman, Huntington Bank, USA
Elie Torgow, CEO, Sterling Group, Detroit
9:10 a.m. – 9:25 a.m. Video Presentation
9:25 a.m. – 9:40 a.m. Recurrent FSGS: The Challenge, the Solution
Donald W. Landry, M.D., Ph.D., Chairman of Medicine Emeritus, Columbia University Irving Medical Center, New York, NY, USA
9:40 a.m. – 10:10 a.m. A Multifaceted Approach to Build an Innovative Therapeutic Landscape for rFSGS
Alessia Fornoni, M.D., Ph.D., Professor of Medicine, University of Miami Miller School of Medicine, Miami, FL, USA
10:10 a.m. – 11:35 a.m. Patient’s Session and Q&A’sComing soon
11:35 a.m. – 11:45 a.m. Break
11:45 a.m. – 12:50 p.m. Political and Community EngagementComing soon
12:50 p.m. – 1:05 p.m. TBA – Morning Summary
Gary Torgow, Chairman, Huntington Bank, USA
1:05 p.m. – 1:50 p.m. Lunch and Group Photos
1:50 p.m. – 2:00 p.m. Introduction to Afternoon Sessions
Simone Sanna-Cherchi, M.D., Associate Professor of Medicine, Columbia University Irving Medical Center, New York, NY, USA
2:00 p.m. – 2:30 p.m. Keynote Lecture
Novel Mechanisms and Therapies for rFSGS
Moin Saleem, M.B.B.S., Ph.D., Director, Bristol Renal, University of Bristol; Founder and Chief Scientific Advisor, Purespring Therapeutics; Bristol Royal Hospital for Children, Bristol, UK
2:30 p.m. – 2:45 p.m. Q&A and Discussion
2:45 p.m. – 3:05 p.m. Clinical and Genetic Predictors of rFSGS
Nada Alachkar, M.D., Associate Professor of Medicine, Johns Hopkins University of Medicine, Baltimore, MD, USA
Rasheed Gbadegesin, M.B.B.S., M.D., FASN, Professor of Pediatrics, Duke Molecular Physiology Institute, Duke University, Durham, NC, USA
3:05 p.m. – 3:15 p.m. Q&A and Discussion
3:15 p.m. – 3:35 p.m. Clinical Trials for rFSGS: What We Have and What We Need
Priya Verghese, M.D., M.P.H., Professor of Pediatrics, Ann & Robert H. Lurie Children’s Hospital of Chicago; Northwestern University Feinberg School of Medicine, Chicago, IL, USA
3:35 p.m. – 3:45 p.m. Q&A and Discussion
3:45 p.m. – 4:00 p.m. Break
4:00 p.m. – 4:20 p.m. Utilization of Patient-Derived Pluripotent Stem Cells and Organoids to Study rFSGS
Opeyemi Olabisi, M.D., Ph.D., Associate Professor of Medicine, Duke University, Durham, NC, USA
4:20 p.m. – 4:30 p.m. Q&A and Discussion
4:30 p.m. – 4:50 p.m. Building a Collaborative Resource to Resolve the Causes and Find New Therapies for rFSGS
Simone Sanna-Cherchi, M.D., Associate Professor of Medicine, Columbia University Irving Medical Center, New York, NY, USA
4:50 p.m. – 5:00 p.m. Q&A and Discussion
5:00 p.m. – 5:15 p.m. Current State and Future Avenues for rFSGS
Debbie Gipson, M.D., M.S., Program Director, National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health, Bethesda, MD, USA
5:15 p.m. – 5:30 p.m. Conclusions From the Organizers
5:30 p.m. Adjournment

Keynote Speaker

Professor Moin Saleem, M.D., Ph.D., will be our Keynote Speaker with the lecture titled "Novel mechanisms and therapies for rFSGS."

Dr. Saleem is a Professor of Paediatric Renal Medicine and the Director of the Division of Nephrology at the University of Bristol, and Bristol Royal Hospital for Children. He is also the Founder and Chief Scientific Advisor of Purespring Therapeutics. Dr. Saleem is a world-renowned physician-scientist who has made seminal discoveries in the field of nephrotic syndrome and rFSGS, bridging human genetics with functional studies to understand mechanisms and find cures.